January 2nd, 2012 | 
Author: Dear Diary,
Recently – we found out my dad, myself and my youngest daughter all have Ehlers Danlos Syndrome. That explains a lot actually. My dad has had joint pain for quite a while, but just figured it was… well…. just because.
I knew I had joint pain here and there, I have stretchy skin and I’m flexible. My joints are not as bad as my daughters.
My daughter, age 11. Shes had joint and muscle pain for over a year. She has stretchy skin, she’s very flexible – or, hyper mobile. She gets tired of walking easily, and needs a wheel chair if going really long distances. She was the first one in our family to be diagnosed with Ehlers Danlos. It did explain much for my dad and I… it runs in the family. My little girl has a bad case of it.
Just to be on the safe side, shes going for a muscle biopsy next week to make sure she doesn’t have something like MD. It took months for us to get this far in her diagnosis of what was going on with her.
For more information on Ehlers Danlos, visit the Ehlers Danlos National Foundation website.
~PK
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